Eubios Ethics Institute

Eubios Ethics Institute

office@eubios.info

IAB Genetics and Ethics Network

Coordinators:

Minakshi Bhardwaj, PhD
lecturer in Health Promotion and Public Health, University of West London, UK

Email: minabhardwaj@yahoo.com

Darryl Macer, Ph.D., Hon.D., MPH.
President, American University of Sovereign Nations; Director, Eubios Ethics Institute, New Zealand, Japan and Thailand

Email: darryl@eubios.info

Next meetings

The Eleventh International Public Health and Bioethics Ambassador Conference (Virtual IPHA11) 5-7 November 2020 (5:00-10:00 Los Angeles time; Skype)

This will also include public discussion of several draft reports from the World Emergency COVID19 Pandemic Ethics Committee, and thematic discussion. It is also a further training day for the International Public Health Ambassador program.

Many papers from the earlier International Public Health Ambassador Conference are available in EJAIB journal after peer review.

Note: We use Skype because less countries in the world are blocked from Skype compared to Zoom

Intensive Conferences on occur on a monthly basis all around the world providing chances for all people to exchange ideas, present their research, and develop questions.

Colloquium series on: African philosophy, genetics and genomics

Direct-to-consumer genetic testing

Genetic testing can now be conducted inexpensively, expeditiously, and directly by consumers. This allows individuals access to their genetic information without the intervention of a healthcare professional. What are the ethical ramifications of direct-to-consumer genetic testing? Should it be regulated? And if so, what should such regulation entail?

The colloquium will take place via Zoom on Wednesday, 25 November 2020, at 2-4pm Central African Time (GMT+2). Three to five presenters will each present a 15-minute paper, followed by discussion involving all attendees.

If you would like to attend the colloquium, please register – free of charge – here: https://forms.gle/9ndDu1CKcGQznrDi9. The Zoom link will be emailed to all registered attendees.

If you would like to present a paper, please submit a 300-word abstract before 28 October 2020 to Dr Marietjie Botes at botesm@ukzn.ac.za. We welcome abstracts that address direct-to-consumer genetic testing from the perspective of African philosophy.

Organized between the UKZN and the IAB Genetics & bioethics network.

Background

Since 1992 there have been a number of networks on different topics in bioethics set up by members of the International Association of Bioethics (IAB). The membership of these networks is open to those interested in research in the specific fields. One of these is the Genetics and Ethics network, which has been active for over 25 years.

The Network will facilitate international communication about research, publications, meetings, etc. related to ethical, legal and social issues raised by both human and non-human applications of genetics and biotechnology. You are invited to send reprints, statements of research interests and activities, notices, news, and so on:

Membership: After the 2020 network meeting the membership list will be updated. The current Network member address list is on the website, https://www.eubios.info/GBNads.htm Currently there are above 270 members, and a significant number from developing countries. There has been not much activity in recent years. Usually there is a session at each IAB World Congress of Bioethics in order for persons at the Congress to get together, and collaborate on join activities as described in the Goals.

Activities:
Journal: The official journal Eubios Journal of Asian and International Bioethics (EJAIB) publishes articles in all bioethics and medical ethics related issues. The journal is published bimonthly and has a wide distribution through print and electronic media. Both members and non members are invited to submit original papers and reprints for publications, statements of research interests and activities, notices and news etc. The Journal is an open access journal on the internet. (www.eubios.info/EJAIB.htm)

Mailing list: The yahoogroups mailing list of the network is an active domain where people post their reflexive ideas, research questions, and adverts for upcoming conferences, workshops and meetings. The circulation list is also used for dissemination of publications; proposals for comments from the members and funding and research opportunities.

Networking: The members meet at every IAB World Congress of Bioethics to date, to discuss the current activities and future work, potential developments and issues related to managing the network; and information dissemination.

Organising sessions: the network organised a number of sessions at IAB congresses (the World Bioethics Congresses, since 1992).

Projects: The members independently collaborate within their countries and regionally to organise conferences and workshops of their interests and carry out projects which could be disseminated through mailing list and the journal.

Proposals are welcome!

Resource videos:

Prof. Darryl Macer, International Approaches to Regulation of Human Genetic Modification https://youtu.be/UxvK1mPlOwU

Prof. Darryl Macer, Bioethics, Genetics, Mutation & Disease (CCIB 3.1) https://youtu.be/sU2iXNEh8DQ

Prof. Darryl Macer, Genetics Testing and Bioethics (CCIB 3.4) https://youtu.be/crzNrS7Lb4s

Prof. Darryl Macer, Genetic Privacy (CCIB 3.5) https://youtu.be/WeevvT_ucHg

Prof. Teguh Haryo Sasongko, Informed consent features for human genomic research – A Malaysian case study https://youtu.be/HJgLSfMm8Fk

Prof. Latifah Amin, Bioethics: Bridge to the Future of Modern biotechnology (ABC19) https://youtu.be/5okkYdtF61w

Prof. Nilza Maria Diniz, Reflections on Gene Editing and Transhumanism https://youtu.be/xV1nmYx_MSo

Prof. Nilza Maria Diniz, Bioethics and Ethics of Embryo Editing through CRISPR https://youtu.be/1aVCyhdgqWw

Prof. Latifah Amin, Measuring Public Reasoning about Biotechnology https://youtu.be/mvOf_qb_Ez8

Prof. Bang-Ook Jun, Ethics of Human Gene-Editing https://youtu.be/aJBBS5k62js

Prof. Miyako Okada-Takagi, Gene Doping and Genome Editing https://youtu.be/doS6QzyK_WI

Prof. Bang-ook Jun, Burning the bridges between Neuroethics and Bioethics? (ABC19) https://youtu.be/XyDmGK6KN0s

Prof. Tamar Gidron, Ethics of Genetic Engineering https://www.youtube.com/watch?v=HyK2JXJJ1Cc

Prof. Darryl Macer, Will Human Genetic Modification in the Market Age Proceed by Competition or Consensus? https://www.youtube.com/watch?v=ob717OT4g70

Prof. Darryl Macer, Exploring the Smithsonian Holocaust Museum, Washington DC https://www.youtube.com/watch?v=-e9IgzmpPDk

Prof. Bang-Ook Jun, CRISPR babies and the regulation of human germline editing. https://youtu.be/RBopYC40oeU

Prof. M. Selvanayagam, Ethics of Biotechnology https://youtu.be/29SjqILZwE0

Prof. Bang-Ook Jun , Eradicating mosquitoes? The promise and peril of gene drive technology https://youtu.be/m4CBcdKKtk8

Prof. Marlon Lofredo, Gene Editing: Defining boundaries and the limitation of the unknownhttps://www.youtu.be/coZXPis_6Q

Prof. Soraj Hongladarom, Ethical Considerations of Gene Editing https://youtu.be/oZXVpWzZoOA

Prof. Deborah Kala Perkins, The ART of Birthing Life in Integrity: From Bioethics to Politics with Assisted Reproductive Technologies;

Prof. Tamar Gidron,Legal concerns in gene editing: compliance with religious, cultural and social norms and values; does the law has any chance at all in a world of overflowing new technologies? https://youtu.be/cczgVCz1NUE

Prof. John Weckert, Playing God with human lives https://youtu.be/oF-PhHeZFRw

Prof. Chutatip Umavijani, Buddhist Perspectives upon Disease and Human Gene Editing https://youtu.be/-bARf1emNow

Recent network meetings:

Network meeting at the IAB Congress : 12:30 PM Eastern time (New York time) in a Zoom meeting on 20 June 2020 during the 15th World Congress of Bioethics.

Eubios Ethics Institute

office@eubios.info